Towards reducing diagnostic delay in endometriosis in primary care: a qualitative study

<jats:sec><jats:title>Background</jats:title><jats:p>Due to a heterogeneity of symptoms, a lack of an adequate diagnostic test and a lack of awareness, diagnostic delay in endometriosis in primary care on average amounts to 35 months.</jats:p></jats:sec><jats:sec><jats:title>Aim</jats:title><jats:p>To determine which interventions are most feasible to reduce time to diagnosis in primary care, focusing on GPs’ preferences, the intervention’s content, design and implementation.</jats:p></jats:sec><jats:sec><jats:title>Design & setting</jats:title><jats:p>We conducted a qualitative study by performing focus groups with GPs and GP trainees between July and October 2021.</jats:p></jats:sec><jats:sec><jats:title>Method</jats:title><jats:p>Data collection was continued until saturation was obtained. Focus groups were transcribed and openly encoded. Themes were formulated by three independent researchers.</jats:p></jats:sec><jats:sec><jats:title>Results</jats:title><jats:p>Divided over five focus groups 22 GPs and 13 GP trainees participated. Three themes were formulated: increasing awareness, combined intervention and reaching unaware GPs.</jats:p><jats:p>Suggestions for a combined intervention strategy were adaptation of guidelines, a diagnostic support tool and compulsory education. To reach unaware GPs, participants felt that education should be offered in regional networks and education for GP trainees should be mandatory. A guideline on menstrual symptoms should be considered, and the term endometriosis should be added to the differential diagnosis paragraphs of existing guidelines. A diagnostic support tool should be linked to a guideline and consist of a flowchart with steps starting with the first presentation of symptoms leading to the diagnosis of endometriosis.</jats:p></jats:sec><jats:sec><jats:title>Conclusion</jats:title><jats:p>According to GPs, a combined intervention strategy consisting of an adapted guideline, a diagnostic support tool and education might be successful interventions in reduction of diagnostic delay in endometriosis.</jats:p></jats:sec>